P.T.O

This month has been a long and strange month. Looking back through my notes and simply trying to remember everything that as happened this month is as usual frightening.

The LA make life so much harder than it needs to be.

Waiting for our daughters EHCP to be finalised and now taking it to tribunal is hard enough. But when the LA then ask for an extension it kind of takes the piss. I don’t think they would be so kind to us.

My ND person is moving forwards in ways that amaze me.

From going down slides that were once to scary to getting on the back of a horse. The amazing things my daughter can do far outweigh the frustration (please remind me I said that)

I can’t do this without my wife.

No idea where we would be, how my daughter’s mental health would be right now if it wasn’t for her. Balancing work 2 kids, a dog and husband can’t be easy (I know it’s not) but somehow she keeps going.

I love my extended family but fuck me…

Don’t offer a slight chance of something happening in front of a NDP and then that thing not happen. We will have to deal with this for days!

Birthdays are fucking hard for everyone.

This point doesn’t need expanding. FML

Cars are a pain.

Bedtimes fucking suck 99% of the time.

No matter what we try it only takes one little thing to go slightly wrong and bang bedtime is fucking crap.

If you have a system that works for you and your family, then please ignore all the advice and looks from everyone else and just do what you need to do to keep your sanity.